Ideas for Change

New York’s IDD service system is under serious strain.

  • About 95,000 people with IDD live in the community, including 30,000 who rely on aging caregivers.
  • Many others are still waiting for services

Staff shortages, too few housing options, old rules, and confusing healthcare systems leave families and providers struggling.

Here are some ideas to help update policies, improve support, and build a stable, person-centered system for people with IDD.

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